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安吉莉娜·茱莉自述:《我为什么要做基因检测》

安吉莉娜·茱莉自述:《我为什么要做基因检测》

“我之所以决定要向公众讲出自己的经历,是因为还有很多妇女并不知道她们或许正生活在癌症的阴影之下。我希望她们同样能接受基因测试,而且如果检测结果表明她们属较高风险人群,应该了解到自己仍有非常可靠的办法。”

——安吉莉娜·茱莉

我母亲和癌症进行了近10年的战斗,在56岁那年去世。她勉力撑着,直到盼来了头几个外孙,将他们搂在怀里。但我的其他几个孩子没有机会认识她,也无从得知他们的外祖母是多么慈爱、多么亲切。

MY MOTHER fought cancer for almost a decade and died at 56. She held out long enough to meet the first of her grandchildren and to hold them in her arms. But my other children will never have the chance to know her and experience how loving and gracious she was.

我们常在一起谈到“妈妈的妈妈”,我要费很大力气才能跟他们说清楚,将她从我们身边夺走的究竟是怎样一种疾病。他们曾问我,我是不是也会生同样的病。我一直让孩子们别担心,但事实上,我携带着那种“有毛病”的基因——BRCA1,而它会大幅度增加我罹患乳腺癌和卵巢癌的风险。

We often speak of “Mommy’s mommy,” and I find myself trying to explain the illness that took her away from us. They have asked if the same could happen to me. I have always told them not to worry, but the truth is I carry a “faulty” gene, BRCA1, which sharply increases my risk of developing breast cancer and ovarian cancer.

我的医生们预测,我患乳腺癌的危险为87%,患卵巢癌的风险为50%,不过对于每个女性来说,风险的概率都不尽相同。平均来说,BRCA1缺陷的人患乳腺癌的危险为65%。

My doctors estimated that I had an 87 percent risk of breast cancer and a 50 percent risk of ovarian cancer, although the risk is different in the case of each woman.Those with a defect in BRCA1 have a 65 percent risk of getting it, on average.

一旦意识到了这就是我面对的现实,我立刻决定要积极行动,尽可能降低自己患病的风险。我做出决定,接受了预防性双乳切除术。我选择先从乳房入手,因为我患乳腺癌的风险要高于卵巢癌,而且这项手术更为复杂。

Once I knew that this was my reality, I decided to be proactive and to minimize the risk as much I could. I made a decision to have a preventive double mastectomy. I started with the breasts, as my risk of breast cancer is higher than my risk of ovarian cancer, and the surgery is more complex.

4月27日,我完成了为期三个月的乳房切除术治疗。在此期间我既确保了自己的隐私,同时也继续工作。

On April 27, I finished the three months of medical procedures that the mastectomies involved. During that time I have been able to keep this private and to carry on with my work.

但我现在将之写了出来,因为我希望其他女性能从我的经历中受益。“癌症”仍是一个令人为之胆寒的词语,会让人心生深深的无力感。但现在,你可以通过一个血检来获知自己是否是乳腺癌和卵巢癌的易感人群,进而采取行动。

But I am writing about it now because I hope that other women can benefit from my experience. Cancer is still a word that strikes fear into people’s hearts, producing a deep sense of powerlessness. But today it is possible to find out through a blood test whether you are highly susceptible to breast and ovarian cancer, and then take action.

我写下这些,是想要告诉其他女性:做出切除双乳的决定并不容易。但我很高兴自己这样做了。我患乳腺癌的风险从87%降到了不到5%。现在我能告诉我的孩子们,他们不用担心妈妈死于乳腺癌了。

I wanted to write this to tell other women that the decision to have a mastectomy was not easy. But it is one I am very happy that I made. My chances of developing breast cancer have dropped from 87 percent to under 5 percent. I can tell my children that they don’t need to fear they will lose me to breast cancer.

安吉莉娜·茱莉自述:《我为什么要做基因检测》
孩子们并没有看到任何让他们不适的改变,这一点让我如释重负。他们能看到我身上小小的疤痕,仅此而已。除此之外都还是原来的那个妈妈,一模一样。他们知道我爱着他们,为了能尽可能长久地与他们在一起,我愿意做任何事情。从个人层面来说,我并没有感觉身为女人自己少了点什么,相反,我为自己做出了一个坚强、同时又完全没有影响自己女性特质的决定而感到力量倍增。

It is reassuring that they see nothing that makes them uncomfortable. They can see my small scars and that’s it. Everything else is just Mommy, the same as she always was. And they know that I love them and will do anything to be with them as long as I can. On a personal note, I do not feel any less of a woman. I feel empowered that I made a strong choice that in no way diminishes my femininity.

我庆幸自己拥有布拉德·皮特(Brad Pitt),一位如此忠诚、始终支持着我的伴侣。所以,如果你的妻子或女友也遇到了同样的事情,你要知道,在这个转变的阶段,你的作用非常重要。给我治疗的医院是粉莲花乳房中心(Pink Lotus Breast Center),在我手术的每一分钟,布拉德没有离开过半步。我们在一起大声欢笑。我们都知道,对于我们的家人来说,这样做是正确的,它将令我们更加亲密。事实也的确如此。

I am fortunate to have a partner, Brad Pitt, who is so loving and supportive. So to anyone who has a wife or girlfriend going through this, know that you are a very important part of the transition. Brad was at the Pink Lotus Breast Center, where I was treated, for every minute of the surgeries. We managed to find moments to laugh together. We knew this was the right thing to do for our family and that it would bring us closer. And it has.

对于看到这篇文章的女性,我希望它有助于你明白自己拥有各种选择。我希望鼓励所有女性,尤其是有乳腺癌或卵巢癌家族史的女性,去主动寻找相关资讯和医疗专家,帮助你度过生命中的这个关卡,并在充分了解讯息后做出你自己的决定。

For any woman reading this, I hope it helps you to know you have options. I want to encourage every woman, especially if you have a family history of breast or ovarian cancer, to seek out the information and medical experts who can help you through this aspect of your life, and to make your own informed choices.

我之所以决定要向公众讲出自己的经历,是因为还有很多妇女并不知道她们或许正生活在癌症的阴影之下。我希望她们同样能接受基因测试,而且如果检测结果表明她们属较高风险人群,应该了解到自己仍有非常可靠的办法。

I choose not to keep my story private because there are many women who do not know that they might be living under the shadow of cancer. It is my hope that they, too, will be able to get gene tested, and that if they have a high risk they, too, will know that they have strong options.

生活总会给你带来无数挑战。有些挑战,我们可以迎难而上,占据主动,只有这样,我们才不会心生恐惧。

Life comes with many challenges. The ones that should not scare us are the ones we can take on and take control of.

原文发表于《纽约时代周刊》



安吉莉娜·茱莉自述:《我为什么要做基因检测》

原创文章,作者:DOT日报,如若转载,请注明出处:https://www.bilingling.cn/news/24600.html

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